What is #Bedfest?
#BedFest is a virtual festival to showcase the experience of living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome as expressed through song, spoken word, poetry or silent expression. #BedFest premieres on Saturday, May 6th on #Meaction.net
As part of the festival, we will host a community call for participants to discuss their work, the act of expressing oneself while suffering with ME, and for the community to share the moment together.
Who is Behind #Bedfest?
#Bedfest is a project of #MEAction.
#MEAction is an international network of patients empowering each other to fight for health equality for Myalgic Encephalomyelitis (ME).
ME is a systemic neuroimmune condition characterized by post-exertional malaise (a severe worsening of symptoms after even minimal exertion). It causes dysregulation of both the immune system and the nervous system. The effects of ME are devastating enough to leave 25% of patients housebound or bedbound. For moderate to severe patients, living with ME is like living with late-stage cancer, advanced stage AIDS, or congestive heart failure for decades. In many parts of the world, it is commonly called Chronic Fatigue Syndrome.
#MEAction is not structured like a traditional advocacy organization. We are a platform designed to empower patients advocates and organizations, wherever they might be, with the technological tools and training to do what they are already doing – better. We aim to become a mass, grassroots organization.