Age now - 39. Diagnosed with M.E. In 1995. Totally bedridden since 2000.
His carer is his mother, who also has M.E.
Living in Kent, England. A student of Fine Arts when he became too ill to continue. Has written film scripts - made a couple of very short films from bed, did some origami, learned calligraphy. Now too ill to do anything.
I can't stand the pain
Is a constant refrain
The voice is meek
The pain insane
Some medics response ?